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I'm a full time carer for my highly disabled mum and step father & my autistic and hyperactive little brother.
Showing posts with label travel. Show all posts
Showing posts with label travel. Show all posts

Thursday, 18 June 2009

Don't Believe in Pickles

Well a lot's happened. And I'm going to skip all of it and progress to yesterday at about 6pm.

Mum yelled at me from downstairs that Pickle might be dead. Not waiting to hear the rest I plummeted downstairs to try to save my beloved niece. I reached the landing to find that she wasn't even here (I'd only just woke up from a nap and pickle had been here when I fell asleep). Elise had just called and said that Pickle had fallen down the stairs and that her neck was twisted. Panicked we searched for the car keys so that me and mum could go and lend assistance as soon as possible. Not finding them we soon gave up and set about walking up the hill.

I tried to force myself into the reality of the situation; that a baby couldn't survive a broken neck and that my 'ickle pickle, whom I had only taken shopping that morning to buy a new sippy cup, was dead. That we'd arrive to find a mother in morning, a child crying and an infant lying still and silent.

Half way up the hill is where the pavement of the hill meets the foot path that leads almost directly to their house. We just made to climb it (while skipping parts of the winding path) when a car tooted, urgently behind us. It was Elise, Stav and the kids. Pickle was strapped into her chair and, aside from a few tears that were nearly dry, she was smiling and happy. I kissed her cheek and moved back so mum could do the same and broke down and cried.

Apparently it was not her neck that was twisted into the wrong angle but her leg. And even that seemed to be fine.

Mum and I squeezed into the back, which wasn't comfortable as we're both rather large people and I was wedged in between mum and a baby seat and Bink was on my lap. Bink cheerfully told the tale of what had happened; that his little sister had fallen down the stairs "very fast" and had cried. They didn't take us home (which, at that point, would have been less than an minute away. I assumed they were giving us a lift because of mum's walking disability). It turned out that we were heading to hospital of the next town. I'm still not exactly sure why.

I could barely look at Pickle. She was wearing a white kind of furry coat and a pink summer dress and the sun glistened in her Blond ringlets and her eyes were bluer than they normally seemed (as, for a while, they've been becoming less and less blue). She seemed absolutely perfect.

I broke down into crying again. Both Bink and Pickle found this very funny, particularly Bink (I don't know if pickle was laughing because her brother was or because of the way my face seemed to contorting itself in a way beyond my control or both).

The thing is... I couldn't believe it was real. I had become convinced they my Pickle was dead, killed by negligence.

I don't know what's real and what's not. Was she alive, as my senses told me? Or was my mind creating a situation that I could cope with so that I didn't have to live with the alternative? A hysterical mother, coupled with a bad line would be hard enough to understand and "leg" could easily sound like "neck". But this was something I'd already considered and that could be the fantasy my mind had chosen to enact for me. The people around me were talking and discussing the situation as it 'seemed' but even their words could have been my imagination. Maybe what heard bore no similarity to what was really said, maybe we all sat in silence for the entire journey.

Maybe the whole trip was a lie, maybe we arrived at Elise's house to find police and an ambulance and her little body was taken away.

When we got their Elise didn't want to wait for the elevator and took pickle down the stairs (but this, too, could have been something I made up as I discovered the other day that pickle doesn't like lifts and cries when the doors shut. Apparently she's a little claustrophobic). Stav was parking the car so it was just me, Mum and Bink going down the lift and I told mum what was going through my head).

We went to the ward for children's minor injuries. There was a room with lots of toys at which pickle was particularly excited. She ran in and out with some new, interesting toy she'd found and handed them all to me before running back in to see what else she could find.

I couldn't bear it.

I couldn't face the possibility that the illusion might be shattered at any moment and that I'd have to face a bitter reality.

I went out and lay on the car's bonnet until Stav came out to get something and then continued to lay there until everybody was ready to leave. Mum sat in the front, this time, and Elise sat in the back with me, which was slightly more comfortable. (Well, not for Elise, but I didn't really give a damn about how she felt).

Elise and Stav argued a lot on the way whom, assigning blame for the fall to oneanother; Stav shouting and her for not being attentive enough; that just letting your eyes off a child of that age for a moment (which she had; she was moving laundry from one room to another) was a moment too long. She, in turn, shouted at him for not putting up the baby gates which were strewn across their house and yard (several of which are largely used for keeping their dogs from fucking). Of course the were both right and should both have something bad happen to them. (I'd quite like to be the one to perform said badness). This made him exceedingly angry and he continued to shout and I tried to tune them out. My interest was rekindled when Elise took her turn to rebuke him by telling her about police procedures and how, if anything serious had happened, the police would take the time to question the neighbours about the family and how Stavross constantly shouts and is abusive to both her and the children. He was quieter after this, but according to mum he was still steaming in his shell for the rest of the trip.

As we re-entered the town boundaries we nearly passed their old car, one they were still trying to sell. (A horrible little convertible). It was on a grassy corner on the drive-way to an industrial estate where I'm quite certain parking isn't allowed. Stavross pulled up here and got out, took Bink off my lap and went to the other car.

Elise took Pickle with her, deciding that she was taking her to a larger hospital for further checks as there have been so many cases of unnoticed child injuries in the press, this last couple of years ('Baby P' being the only example they could name, who had a broken spine that the doctors they took him to completely missed, somehow).

I wanted to be alone, so (after taking some painkillers for a headache brought on by travel sickness) I slipped unnoticed into a spare bedroom (one with no available beds, as it's recently become little more than mum's wardrobe, as she has an addiction to eBay she can't contain) where I lay on the floor between clothing wracks.

I lay there for an hour or 2 before anybody found me. Mum turned the light on and asked if I was ok and I told her I wanted to be alone, so she turned it off again and left.

At some point I fell asleep. I don't know what time it was. The painkillers must have knocked me out (the only ones I could find were memtid, which are something of an 'Overkill' for a travel sickness headache) because it was still quite early for me as I'd had a nap in the early afternoon and I was very uncomfortable.

I woke up with some parts of my body in cramp and others were numb. It was about 11.30. Mum and Jeff were already downstairs. Apparently I had a dinner in the oven. It was chips and a burger. Everything was still very unreal to me. I don't know what time Elise arrived but I hadn't quite finished eating at the time. Mum took the baby to bed and I took some milk up, after.

I still didn't want to face Pickle this morning. I realised why, later.

This morning, after feeding her and either before or after I bathed her, she was playing with a pot of sudocrem (cream for babies' bottoms) which I took off her, causing her to bump the back of her head on the table. And she cried, and cried hard and I couldn't bring myself to comfort her.

She got up and cried on her feet and asked to be picked up and leaned on the front of the sofa when I didn't and rubbed her tears away with little fists and came back to me and hugged my legs. I wanted to pick her up and give her all the love she wanted until the pain went away but I knew that if I did and the illusion shattered I'd fall twice as hard and might be irreparably broken when I landed. When I still couldn't pick her up she went to the sofa again and repeated and came back and hugged my legs. It was heart breaking.

I did pick her up this time but I couldn't hug her, which she clearly didn't understand. I took her up to her grandmother. I would have asked her to give pickle the love she needed but she'd stop crying. Apparently, after that long, just being held was enough, even if it wasn't particularly affectionate. I tried to explain to mum what my problem was but I couldn't. It's been very hard to explain to anybody.

I even went to the doctor to try and get referred to a therapist.

He said it was most likely brought on by stress and prescribed me something mild to take the edge off for a few days and said that if I still had the same problem after then that I should come back and he'd make the referral. (Actually I'm not sure if he said he'd definitely make the referral, but he did say that I should come back if the problem persisted).

We went shopping then. What was promised to be 'just a few things for dinner tonight' turned into things for dinner tomorrow, things for dinner tomorrow and things to be eaten over the course of the week. I had prevented mum from getting the deepest size of trolley and was forced to regret that with the amount of things she got.

On the way home we 'called in' to 'check' on pickle, who was promptly strapped into the baby seat. I still couldn't face her. I walked home.

That pretty much brings me up to speed. I've been home for hours but I get distracted easily while writing these things.

Tuesday, 17 February 2009

Chaperon

(I should have typed this up half a week ago, since I mentioned it several times in advance of the event, but when I haven't been busy I've either been tired or just plain lazy).

I suppose a chaperoned date doesn't feel like too much of a date at all. I wouldn't know since I was the chaperon, in this case, and I've never had a chaperon. They spent most of them time not talking to eachother; mostly because Chug is naturally aloof to... Well, just about everyone. The journey out of town he spent most of his time staring out of the window and I, wanting to give them the illusion of privacy, stuck my nose in my book.

(I must say that the first part of the Earthsea series has not been nearly as interesting as I hoped it would. I think LaGuin managed to recreate Tolkien's problem in precisely the opposite way; he writes pages and pages of detail that cover just a few hours, she writes pages and pages of detail covering several years and neither of them seem to have enough story within those pages and I get bored. Towards the end I was really forcing myself to continue, mostly because I have a Neil Gaiman book waiting for me when I'm done but I've reached the second book in the volume and I haven't found the will to read any of it since I finished the first one on the train, that day).

We then hopped on the next bus from the bus station after going to some trouble to find out which one it was. (Apparently it was from 'Stand E'. Again. It's always there, but since it's only once every year or so that I take the buses in Shrewsbury, which are the only times I ever ride on buses at all, I live in constant fear that they will have changed the routes and if I get on 'E' it will take me to completely the wrong place) I learned the value of getting a return ticket the hard way, which I will explain later. (I don't know why I never bother with them for trains, they're completely sensible).

They had already decided on 'The Pink Panther 2' (Steve Martin) the night before. I had been promising myself that I would attend a different film to them but there was nothing that started at the same time that had a similar run time; meaning there was nothing I could watch separately without leaving the 2 12-year-olds unaccompanied. (There was nothing I wanted to see, anyway. There was only one film that looked remotely interesting that turned out to be by Woody Allen. A quick check of the weather indicated that hell was, indeed, still in the middle of a heatwave so Woody Allen was still out of the question). So I got a ticket for the same movie.

The show time was at 4pm which gave us over 2 hours to kill, so I got them each some Ben + Jerry's Ice cream and gave them a £5 note to go on the arcade (I say 'arcade' but a 3m x 5m corner with 1 game, 1 lucky dip and a "who wants to be a millionaire" machine does not an arcade make by any standards), though I would have given them £10 but the cash machines had been shut down and the £5 was all I had to give them. After that we still had time to kill so I took them to dinner at Nandos, which made quite an impression on both of them. Chug displayed an uncharacteristic amount of machismo by ordering his chicken "extra hot" and putting their special "extra extra hot sauce" on everything and daring me to do the same after mocking me for my feeble (he didn't actually use that word but I doubt he actually knows what it means) choice of Lime and Mango chicken which, according to the menu he had studied (though not much further than the 4 grades of spice on the chicken) was the least spicy of the chicken they did.

I had to explain to him that, once you're particularly used to hot foods, you find that various chili peppers and chili powders don't actually change your food's flavour, much, it only makes it hotter and that my choice of lime and mango was made purely on the grounds that it seemed like it was one of the most flavourful. (Alternatively there was 'Lemon and Herb', however seem to have a lot of chicken marinaded in herbs while lime with mango was something I hadn't tried, though I have had them as marinades separately on other occasions, usually with various mixed herbs).

The kids sat themselves down before I could suggest that they sit opposite each other, as etiquette dictates, though I didn't feel the need to correct them since sitting adjacently on a round table can be more intimate and, since it was only a table for 4 and it was a round table I would have been between then, which would have detracted from that intimacy.

They were both suitably impressed by the place, Chug even complained that nobody had ever taken him there before (we explained this was because he had always refused to go before, favouring the allure of Pizza Hut, on the other side of the town). The place was more 'up-scale' than anything either of them were used to (hell, it was nicer that some of the places I've eaten and I've attended some pretty swanky venues, and it certainly had the most posh rest room I'd ever seen; it even contended with those that had attendants). I wasn't expecting a franchised restaurant of that type to look classy; I was expecting something with the atmosphere of a more generic fast food place. The only problem was that the music was so loud we practically had to shout to hear oneanother. (We even considered writing something to this affect on the feedback form that came with the menus, but when you have a lot of family in various areas of the catering business you learn what happens when you give the people who serve your food any form of criticism. I decided to comment online, nice and anonymously).

The film had some funny moments. The plot wasn't great but, then, it was a sequel which is something generally to be avoided with this type of film. It was funny enough to make me consider seeing the original (and by 'Original' I mean the first of the 2 Steve Martin PP films, not the original Peter Sellers version which I have seen many times and never laughed at once), as there's the likelihood that this was just another case of a movie company trying to make a quick profit following up on an unexpected cash cow.

When the bus back to the station arrived I realised that it I had no money to pay for the tickets and asked the driver (knowing that the odds were slim to none) if he accepted cards. This is why I should have got return tickets, as it would have been easier than paying for a return journey. I don't know why I don't bother getting them on buses when I always get them for trains. I will make a point of doing so in the future. He said they didn't so I said I'd just go to a cash point and wait for the next bus, but he said he'd lets us pass this time. There was only one other passenger on the bus and when she got off he asked me 'if that trick works often' and I explained that I hadn't intended for it to happen at all, that I merely hadn't been thinking ahead (but most of what I do is spontaneous or with reluctance and therefore I seldom plan ahead).

When we got to the station there was over an hour to wait until our train arrived (trains between my town and Shrewsbury arrive every 2 hours, so it was just a case of bad timing that we arrived half way between 2 trains) and so we waited on a bench on the cold platform.

While Chug had been very aloof with Laura on the way out there seemed to be something sweet between them, in a shy sort of way, and he did actually make eye contact and there were lots of embarrassed smiles between them. (I actually did catch a glance at them doing something which they swore me to secrecy about. Nothing bad, it was actually pretty innocent, but being 12 years old they're shy and easily embarrassed (especially since I'm always the first person to tease them on their 'puppy love'). I said nothing about it on the way home and I've been bursting to tell somebody IRL ("In Real Life"), such as Dimebar or Mum or Elise (or even somebody online). But if there's one thing I'm good at it's keeping secrets (or at least I am when I know it's a secret, if somebody fails to ask me to keep something on the down-low then I don't see how I can be held responsible for what I share with others. Or maybe that's just the aspergers in me...) I would write it in my journal, as that's always a suitable place to keep secrets (and I do write plenty of stuff that could be construed as confidential to others who didn't tell me it might be) however, having said I wouldn't tell I don't think it would be right for me to do so knowing that I'm going to publish my journal online, essentially telling the world (or at least the world who wants to know. So far I think that's one person).

She came to visit on both the following days and is here now as I type this (when last I passed chug's room she was on his WoW account while he was playing some xBox game she got him).

Yesterday I awoke with a nasty tummy ache and found myself doing squats to relieve it, assuming it was a blockage. Sure enough I felt whatever it was moving through my system quite rapidly over the next few hours. I made sure I had plenty more fiber yesterday, to try to make sure it didn't happen again, though it did.

I had Bink last night and he woke up crying to I took him down for some milk. I fixed him a bottle, put the fire on and we curled up watching the baby channels under a blanket and both fell asleep. (Which was a bugger, because 30 minutes before I next woke up we had a delivery, but as there was nobody there to receive it (the delivery guy didn't knock very loud and didn't even bother ringing the bell) he left a note telling me where to get it). I went to pick it up at 10am only to be told to come back at 1pm (it's 12.43 right now). I don't really know what I did before typing this, I did spend a while looking for torrent files (the latest episode of Kyle XY would have been broadcast in the U.S, however the only rips I could find were all over 1GB, so I'll wait for a smaller file. I know it might actually be quicker to download it at 1GB but disk space has really become an issue, lately).

When Bink woke up again (thus waking me also) I had another stomach ache, though not nearly as bad, so I did some squats and encouraged Bink to do the same for the sheer hell of it. (He seemed to think I'd gone mad).

And now the big question; do I, a guy who must have every moment of his time filled with something, even if it isn't very exciting, to occupy his mind, kill the next 10 minutes or so by dossing about? Or do I load a computer game, waiting for which and getting stuck in with eat those 10 minutes and demand more?

I guess the game it is, then...

Friday, 13 February 2009

Shrewsbury

I've logged on to this with the intention of writing up yesterday but here I am; just staring at the screen.

Elise dropped off Pickle at around 8am, which was thoughtless because she knew Mum was going to the Shrewsbury hospital in today and we had to be on the road by 10. But she told her that we had until we set off.

So this meant calling Tony to take over while we were gone. We generally have to tell Tony appointments are way earlier than they are because by the time he actually turns up there's almost no time to actually make our destination. We told him the appointment was at 10 so, naturally, he didn't arrive until after 10.40 when the journey takes 45 minutes if there's little or no traffic. He even made a joke about how there was no point in setting off in the time left. His tone suggested that he either wanted her to be late or that he knew she wasn't telling the truth about when her appointment was. (She only started lying about it when she had 2 appointments on the same day a few months ago and only had time to attend the second. I suspect Tony didn't believe she had the first and is now playing mind games).

It's nice to drive with people since car travel means that everybodys eyes have to face forward and, for me at least, conversation becomes more natural.

I sat in on her consultation rather than be left with nothing to do in the waiting room and I'm glad I did as, although a lot of it was pretty gross, there was also some very humorous terms thrown about (such as something that sounded like a 'Pretzel Enima').

I then accompanied her to have a blood sample taken. I picked us up a couple of drinks from a hospital shop on the way (apparently they have more shops, now, all of which seem to sell snacks and soft drinks). I got mum a diet coke and I tried a carrot and orange juice thing which was surprisingly nice. (I don't like carrots, but I don't mind when stuff I drink comes with its juice in it. Mum said carrots tend to go well in things or make things taste better. I said, 'like what?' and she gave a couple of examples that included carrot cake. I pointed out that I did like carrot cake, especially for the cinnamon, but when I make carrot cake I tend to leave out the carrot cake and if anybody approaches my carrot cake mix with wallnuts I get very annoyed).

We then went to check out cinema times for Saturday, ready for Chug's little date. You see, Cineworld has the most annoying phone system ever. It's much worse than "if you want to blow your brains out; press 1. If you want to be annoyed; press 2. If you want to be put through to another annoying list of things that don't sounds like they apply to you; press 3!". These guys have a voice recognition system, which means you can't talk to other people while on the line to discuss the options or anything because the computer can mistake what you're trying to say for the various options. And you can't just stay on the line for an operator because it'll just keep reading out the same list over and over. The web site was little better, either. Neither the phone line or the web site had listings specifically for the 14th, and those films which I worked out to be actually showing on the 14th made up a pretty dismal selection of about 3 and there's no way a multiplex is just showing 3 movies on valentines day.

The cinema, however, was closed. (And it was after 1pm). There was a notice in one of the windows saying that it would be opening 30 minutes prior to the first film but didn't mention when that would be. (Over the week I even tried looking up details for listings at the Odeon, the nearest one of those being another 30 miles away, however their website was just as useless. I ruled out going to that one because I don't know how to get to the cinema from the train station in that town, or even how to get to the bus stop... or the address of the cinema to know which bus to get on. Actually I don't think I know what the address of the Shrewsbury cinema, either, and it's been a while so I don't know if they've changed the bus routes or anything so I'll have to take a look at that, too).

It appears the customer relations for Cineworld are pretty non-existent. The phone message actually gives the web address of the people who created the voice recognition software. I don't know if I should really complain to them, it's not their fault that the company who hired their product didn't add a way to speak to be put through to a human.

I would still like to send a strongly worded letter to somebody or other.

We then went to the catering warehouse and picked up a few needful things and one or 2 slightly more frivolous ones.

I don't remember much of what happened after going home. Or I might do, but I'm too lazy to access those memories because I've been typing almost since I woke up (except for the usual distractions, and the usually unusual ones) and haven't had a drink this morning so I'm getting a headache which I'll need to do something about soon.

I do remember that Dave and I watched 'Night Watch', one of the DVDs I picked up at ego last week or the week before, before he decided to go to bed and he even managed to stay awake all the way through which was good because he normally doesn't last that long if we watch something that late at night. It was a good film, I wasn't expecting it to be Russian (I guess I didn't do enough research on it) but being foreign isn't something that would usually stop me from watching a film. In spite of the way they were clearly going for a 'Blockbuster' it wasn't too cheesy.

And there I'll stop to get some painkillers, a drink and maybe even some kind of snack to have by way of breakfast.